Issues around biomarker disclosure─from the standpoint of people with dementia and their families

Kentaro Horibe

National Center for Geriatrics and Gerontology

The results of examinations and diagnoses, including biomarkers, may have a significant impact on the later lives of the patients and their families.　Nevertheless, disclosure often ends up with one-sided explanations at the convenience of the discloser.
This paper provides an overview of the various challenges associated with disclosure, especially from the perspective of patients and their families.
The basic assumptions, methods, and implications are reviewed in terms of “Rights,” “Communication,” and “Engagement,” respectively.

Address correspondence to Dr. Kentaro Horibe, National Center for Geriatrics and Gerontology （7-430 Morioka-cho, Obu, Aichi 474-8511, Japan）